Specialist Appointment About M.E

As I mentioned in my last blog post (here) I went to see a Rheumatologist that I had been referred to about my M.E. It was my first appointment with a specialist about my M.E and I wasn’t too sure what to expect. As soon as I knew they were setting an appointment up for me I started to write down my symptoms in my phone so that I wouldn’t forget something.

At the appointment he asked some general questions, what I did for work, how long had I been sick and then asked about the symptoms I have. He then pressed on different spots on me like a place on my arm and back and asked if each one was tender or sore. They were and some were more sore than others. I then had to lay down on the bed as he moved my fingers, arms and legs seeing how the joints were moving. I also had to try and bend over and touch my toes and place my hands on the floor keeping my legs straight.

After the examination he said that I have Fibromyalgia. He did say though that M.E/ Chronic Fatigue syndrome fall under the same umbrella of Fibromyalgia. He also said that I am hypermobile which means my joints are a bit more flexible than normal.

He went over some treatment things but there was so much to take in. I tried to remember most things. One main thing he said about was graded exercise therapy where I would do some recreational exercise and slowly build up the time I do it for over two years. Something like going for a walk each day even if I’m feeling really unwell. It is something I have heard mixed views on but I am going to try it and talk it over with the people helping me at the moment.

Some other things were.

  • Get into a better sleep routine and get up at the same time every morning.
  • Relax my muscles and sit better when on the computer or iPad.
  • Use a handbag which goes across my body so that I don’t tense my shoulders trying to keep my bag on.
  • Eat meals at a routine time.

My appointment lasted about an hour mum said which was really good I thought. I wasn’t surprised when I heard him say he thinks I have Fibromyalgia as that and M.E are usually linked together. A lot of the symptoms are the same where in Fibromyalgia there may be more pain and M.E/ Chronic Fatigue Syndrome more fatigue. I think I am kinda in the middle in terms of what symptom is more present. I am a little nervous about trying the exercise therapy as I have heard that it doesn’t always work and some people have been made worse. I still think I need to try it though and will see what my doctor and the other people say. I know each person and doctor is different though in what they say and what helps them.

If you have been in a similar situation I would love to hear your experience and any tips you may have.

Love, Me

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7 thoughts on “Specialist Appointment About M.E

  1. MjBee says:

    I was just diagnosed with fibro too. I have heard good and bad about graded exercise. I think if its done properly it could be beneficial…like start with 2 minute walks or 200 steps, and very very slowly build up from there.

    Liked by 1 person

  2. beyondcelery says:

    I also have been recently diagnosed with Fibro, and I also have hypermobile joints. That causes problems when you over extend and then damage yourself =(. Still, I hear exercise really does make a difference – that’s what I’m working on right now. Good luck!

    Liked by 1 person

  3. Megan S says:

    I’ve been diagnosed with both Fibromyalgia and ME/CFS. I focus on pacing rather than graded exercise therapy. That means that yes, I increase slowly over time but I also listen to my body and don’t push too hard when my body says I need to rest.

    Liked by 2 people

  4. SH says:

    Ugh bummer about the diagnoses. Sorry to hear that, but I know sometimes its nice to get more details and diagnoses from a Dr. Sounds like it went pretty well which is great for a Dr appt. Hope you can improve some with his advise.

    Liked by 1 person

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